April 2016
Cynthia
Belcin
,
BSN, RN-BC
Medical Surgical Unit
Advocate Illinois Masonic Medical Center
Chicago
,
IL
United States
Cynthia was assigned to a 20-year-old patient, R, with Batten's disease with comorbidities of blindness, quadriplegia, and intermittent seizures. The family had decided on palliative care, making R a partial LET, with no intubation or chest compressions, but all other aggressive care was to continue. R required frequent medication for her seizures, frequent assessment of the respiratory status and oxygen adjustment. Cynthia cared for R for three 12-hour shifts. Cynthia was also the preceptor for new grad during all of the shifts. By the third day, R had deteriorated to the point of having frequent seizures that were not responding to the Ativan dose she usually received and she required hourly doses of the medication. Cynthia worked with the family to explain the continued deterioration in R's condition in their native language. The family then decided to remove the BIPAP. R was given several doses of morphine to keep her comfortable and passed away at the end of Cynthia's shift. Cynthia's dedication to keeping the patient safe, comfortable, and ensuring the family understood the dying process helped the family finally let go and allow R a comfortable passing. While it was emotionally upsetting for Cynthia to care for a dying patient who was so young, she handled it with the compassion and empathy the family needed. Cynthia was also able to guide the new grad in the care of R in a thoughtful, caring way.